Research & Dissemination

Abstracts, Posters
& Publications

A decade of peer-reviewed research, conference presentations, and published findings — grounded in lived patient experience and conducted with leading life sciences partners.

17+

Publications

5

Partner Orgs

2018

First Published

2025 – 2026
In Partnership with EMD Serono
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Journal Article January 2026

Health Care Providers' Perceptions of Unmet Needs Among African American Cancer Caregivers: Qualitative Investigation Among US Medical Professionals

Brad Love, Gerold Dermid, Sean Upshaw, Amy Stark.

Journal of Medical Internet Research: Cancer, Vol 12

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5-Year Partnership with Bristol Myers Squibb
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Journal Article September 2025

Amplifying the Future of Patient Voices and Cross-Disease Networking Through the Advocacy Exchange

Brad Love, PhD; Sheila Thorne, BA; Laudy Robinson, BA; Eileen Shannon, MS; Katie Stout, BS; David Craig, MBA; Jasmine Greenamyer, MPH.

Journal of Patient Experience

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2023 – 2024
In Partnership with Seagen
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Journal Article April 2024

Patient preferences in the treatment of stage III/IV classic Hodgkin lymphoma: Results from the CONNECT cross-sectional survey

Darcy R. Flora, Susan K. Parsons, Nicholas Liu, Kristina S. Yu, Katherine Holmes, Carlos Flores, Michelle A. Fanale, Andy Surinach, Rachel Byrd, Andrew M. Evens.

British Journal of Haematology, 204(4):1262–1270

Read on PubMed
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Journal Article November 2023

The impact of classic Hodgkin lymphoma on informal caregivers: results from the CONNECT cross-sectional survey

Darcy R Flora, Andrew M Evans, Nicholas Liu, Kristina S Yu, Rachel Byrd, Michelle A Fanale, Katherine Holmes, Carlos Flores, Andy Surinach, Susan K Parsons.

Supportive Care in Cancer, 31(12):664

Read on PubMed
In Partnership with Pfizer
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Abstract November 2023 · ASH

Multiple Myeloma Treatment-Related Decision-Making and Preferences of Patients and Care Partners in the United States

Darcy R Flora, Rachel Byrd, Daniell Platt, Patrick Hlavecek, Erinn Hoag Goldman, Joseph C Cappelleri, C Todd Kennedy, Thomas W LeBlanc.

Blood, 142(Supplement 1): 7357 — 65th ASH Annual Meeting

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Abstract November 2023 · ASH

Changing Care Journey for Patients with Multiple Myeloma in the United States

Darcy R Flora, Rachel Byrd, Daniell Platt, Patrick Hlavecek, Erinn Hoag Goldman, Joseph C Cappelleri, C Todd Kennedy, Thomas W LeBlanc.

Blood, 142(Supplement 1): 7383 — 65th ASH Annual Meeting

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2021 – 2022
In Partnership with Syneos Health
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Poster Presentation December 2022 · ASH

Understanding the Patient Experience of Those Who Have Undergone or Considered CAR T-cell Therapy in the United States: CAR T-cell Therapy Patient Engagement Project (CPEP)

Messina AJ, Byrd R, McDonough K, Flora DR, Schneider S, Towne S, Prock J, Platt D, and Bentley J.

64th ASH Annual Meeting and Exposition, New Orleans, LA

In Partnership with Seagen
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Online Abstract June 2022 · ASCO

The Impact of Classic Hodgkin Lymphoma on Informal Caregivers: Results from the CONNECT Study

Flora DR, Evens AM, Liu N, Yu KS, Byrd R, Kumar S, Fanale M, Holmes K, Flores C, Surinach A, and Parsons SK.

2022 ASCO Annual Meeting, Chicago, IL

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Poster Presentation December 2021 · ASH

Classical Hodgkin Lymphoma CONNECT — Cross-Sectional Survey Compared by Age

Flora DR, Parsons SK, Liu N, Yu KS, Holmes K, Flores C, Fanale MA, Kumar S, Surinach A, Byrd R, and Evens AM.

63rd ASH Annual Meeting, Atlanta, GA · Blood, 138(Supplement 1), 1966

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Poster Presentation December 2021 · ASH

CONNECT: Physician First-Line Treatment Preferences for Stage III or IV Classical Hodgkin Lymphoma

Evens AM, Yu KS, Liu N, Surinach A, Holmes K, Flores C, Kumar S, Fanale MA, Flora DR, and Parsons SK.

63rd ASH Annual Meeting, Atlanta, GA · Blood, 138(Supplement 1), 2467

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Poster Presentation December 2021 · ASH

CONNECT: Observations of Physicians on Treatment and Interim PET-Adapted Regimens

Parsons SK, Yu KS, Liu N, Kumar S, Fanale MA, Holmes K, Flores C, Surinach A, Flora DR, and Evens AM.

63rd ASH Annual Meeting, Atlanta, GA · Blood, 138(Supplement 1), 1390

In Partnership with Amgen
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Journal Article April 2021

Assessment of Bone Health Education in US Multiple Myeloma and Solid Tumor Patients at Risk for Skeletal-Related Events (BEACON)

Darcy R Flora, Katherine B Carlson, David C Fuehrer, Benoit Cadieux, Guy Boike, Jennifer Schenfeld, and Kimberly Lowe.

Cancer Management and Research, 13: 3529–3537

Read on PubMed / PMC
2018 – 2020
In Partnership with Amgen
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Poster Presentation December 2020 · SABCS

Findings from BEACON: A survey of bone metastatic breast cancer patients at risk for skeletal-related events

Flora DR, Carlson KB, Lowe K, Cadieux B, Boike G, Bachmann B, Fuehrer DC.

2020 San Antonio Breast Cancer Symposium (SABCS)

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Poster Presentation November 2020 · AONN

Insights on Bone Health Awareness and Education from Cancer Patients at Risk for Skeletal-Related Events: Findings from a Patient-Centric Survey

Carlson KB, Flora DR, Lowe K, Bachmann B, Cadieux B, and Fuehrer D.

11th Annual AONN Navigation & Survivorship Conference

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Poster Presentation October 2019 · JADPRO

Findings from BEACON: A Survey of Multiple Myeloma and Bone Metastatic Solid Tumor Patients at Risk for Skeletal-Related Events

Carlson KB, Flora DR, Lowe K, Bachmann B, Shankar H, Christodoulopoulou A, and Rana J.

JADPRO Live 2019, Seattle, WA

Gryt's Founding Publication

The Audacity of Engagement: Hearing Directly from Young Adults with Cancer on Their Attitudes and Perceptions of Cancer Survivorship and Cancer Survivorship Research

Catherine Benedict, David Victorson, Brad Love, Dave Fuehrer, Allison Lazard, Adam J Saffer, Thea Linscott, Matthew Zachary.

Journal of Adolescent and Young Adult Oncology, 7(1):103–111 · February 2018

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