Abstracts, Posters
& Publications
A decade of peer-reviewed research, conference presentations, and published findings — grounded in lived patient experience and conducted with leading life sciences partners.
17+
Publications
5
Partner Orgs
2018
First Published
Health Care Providers' Perceptions of Unmet Needs Among African American Cancer Caregivers: Qualitative Investigation Among US Medical Professionals
Journal of Medical Internet Research: Cancer, Vol 12
Read PublicationAmplifying the Future of Patient Voices and Cross-Disease Networking Through the Advocacy Exchange
Journal of Patient Experience
Read PublicationPatient preferences in the treatment of stage III/IV classic Hodgkin lymphoma: Results from the CONNECT cross-sectional survey
British Journal of Haematology, 204(4):1262–1270
Read on PubMedThe impact of classic Hodgkin lymphoma on informal caregivers: results from the CONNECT cross-sectional survey
Supportive Care in Cancer, 31(12):664
Read on PubMedMultiple Myeloma Treatment-Related Decision-Making and Preferences of Patients and Care Partners in the United States
Blood, 142(Supplement 1): 7357 — 65th ASH Annual Meeting
Read AbstractChanging Care Journey for Patients with Multiple Myeloma in the United States
Blood, 142(Supplement 1): 7383 — 65th ASH Annual Meeting
Read AbstractUnderstanding the Patient Experience of Those Who Have Undergone or Considered CAR T-cell Therapy in the United States: CAR T-cell Therapy Patient Engagement Project (CPEP)
64th ASH Annual Meeting and Exposition, New Orleans, LA
The Impact of Classic Hodgkin Lymphoma on Informal Caregivers: Results from the CONNECT Study
2022 ASCO Annual Meeting, Chicago, IL
Read AbstractClassical Hodgkin Lymphoma CONNECT — Cross-Sectional Survey Compared by Age
63rd ASH Annual Meeting, Atlanta, GA · Blood, 138(Supplement 1), 1966
CONNECT: Physician First-Line Treatment Preferences for Stage III or IV Classical Hodgkin Lymphoma
63rd ASH Annual Meeting, Atlanta, GA · Blood, 138(Supplement 1), 2467
CONNECT: Observations of Physicians on Treatment and Interim PET-Adapted Regimens
63rd ASH Annual Meeting, Atlanta, GA · Blood, 138(Supplement 1), 1390
Assessment of Bone Health Education in US Multiple Myeloma and Solid Tumor Patients at Risk for Skeletal-Related Events (BEACON)
Cancer Management and Research, 13: 3529–3537
Read on PubMed / PMCFindings from BEACON: A survey of bone metastatic breast cancer patients at risk for skeletal-related events
2020 San Antonio Breast Cancer Symposium (SABCS)
Insights on Bone Health Awareness and Education from Cancer Patients at Risk for Skeletal-Related Events: Findings from a Patient-Centric Survey
11th Annual AONN Navigation & Survivorship Conference
Findings from BEACON: A Survey of Multiple Myeloma and Bone Metastatic Solid Tumor Patients at Risk for Skeletal-Related Events
JADPRO Live 2019, Seattle, WA
Gryt's Founding Publication
The Audacity of Engagement: Hearing Directly from Young Adults with Cancer on Their Attitudes and Perceptions of Cancer Survivorship and Cancer Survivorship Research
Journal of Adolescent and Young Adult Oncology, 7(1):103–111 · February 2018
Read on PubMed